Long-Term Follow-Up

Featured Readings

This page contains links to featured articles that have been adapted from Fred Hutchinson publications as well as other items pertinent to long-term follow-up patients.

LTFU Patient Comments - A selection of patient comments from the FHCRC Long Term Follow-Up questionnaires that have been returned during the past 10 years. 

A responsibility to improve health  Spring 2013
About 16,000 people are treated with blood or marrow transplantation in the U.S. each year, with more survivors than ever before. In 2012, 456 blood or marrow transplants were done at Seattle Cancer Care Alliance.

Financial stress could hamper recovery  Fall 2012
In the last decade, researchers have made major strides against cancer. Transplant survivorship rates have increased dramatically, and the risks of complications from these procedures continue to drop significantly.

Depression and fatigue: Is it in the genes?  Summer 2012
Fatigue and depression are two of the most common problems cited by patients following transplantation.

The challenge of transplantation: suitable matches  Spring 2012
Not too long ago, seeking a suitable donor for a blood or marrow transplant patient was like looking for the proverbial needle in a haystack.

What are we doing for survivors today?  Winter 2012
Last summer, when the Hutchinson Center hosted a reunion for more than 300 former patients surviving more than five years after bone marrow and stem cell transplantation, Dr. Karen Syrjala spoke to them about a subject with clear implications in their lives: “What have we learned from you? And more importantly, we have to ask ourselves, what are we doing for survivors today?

Survey reveals encouraging heart news  Fall 2011
For the past several months, Dr. Eric Chow has been working hard to gather and interpret answers from transplant patients who returned a survey on heart and blood vessel diseases.

New leader at helm of pediatric services Summer 2011
Dr. Jean Sanders is as busy as she has ever been after 36 years of tireless work on behalf of pediatric patients at the Hutchinson Center.

Center reports transplant improvements  Spring 2011
Dr. George McDonald intuitively knew that transplant patients overall were doing better than ever, but he didn’t have the data to back it up.

Patients need more preventive care info Winter 2011
Last year, LTFU patients received a questionnaire that included a special section on preventive care practices.

Wanted: a completed questionnaire  Fall 2010
Learning about what happens to patients after a transplant is key to better medical care and science.

Looking for a better quality of life  Summer 2010
There are 12 million cancer survivors in the United States today. And they all want the best possible quality of life.

The spirit of a pioneer  Spring 2010
Dr. E. Donnall Thomas built his career fighting an unrelenting killer. As he turns 90, we revisit his legacy and ponder the future of cancer care.

Key study shows more need for research  Winter 2009
Before bone marrow and stem cell transplants became standard therapies, hardly anyone survived blood cancers. A 2010 study shows, 80 percent of patients who have transplants and survive their first five years go on to survive for at least another 15 years.

Patients are always in the driver's seat  Fall 2009
If you were one of the many patients who participated in a stem cell transplant via a clinical trial at the Hutchinson Center, chances are that you made this decision before you got here.  At least, that is what patients are telling us today.

Guest house for patients ready to open  Summer 2009
This fall, the Seattle Cancer Care Alliance is scheduled to open a second housing facility to help patients who require short stays during treatment.

Lenses offer relief for painful dry eyes  Spring 2009
In a study led by Fred Hutchinson Cancer Research Center, researchers found the use of a fluid-ventilated, gas-permeable scleral lens appeared to be safe and effective in patients with severe eye inflammation and dryness, a condition that can occur as a result of graft-vs.-host disease (GVHD).

Patients were his constant inspiration  Winter 2009
If you ask Dr. Robert Hickman why he worked at the Seattle Cancer Care Alliance well past his retirement age instead of seeking sunshine in warmer states, the answer is simple: a deep devotion to his patients.

Life after transplant: a rich journey  Fall 2008
In Dr. Stephen King's long list of former Seattle Cancer Care Alliance transplant patients, one stands out-a young man who had troubled relationships with his wife, family and faith.

For SCCA volunteers, patients are tops  Summer 2008
Barbara Miller understands all too well the challenges patients face when they come to the Seattle Cancer Care Alliance for treatment.

Anniversary visit key to good health  Spring 2008
At the Seattle Cancer Care Alliance, patients who undergo bone-marrow and peripheral blood stem-cell transplants are asked to return for a comprehensive evaluation after one year.

Making the most out of SCCA's services  Fall 2007
One avenue open to LTFU participants under the Survivorship Program at Seattle Cancer Care Alliance is participation in the Medical Oncology Survivorship Team clinic, better known as the MOST Clinic. To LTFU participants, the MOST Clinic should be seen as a supplemental service that's available to them. It simply offers another way to help them lead healthy lives.

Helping transplant patients breathe easier  Summer 2007
Every minute of every day, lungs provide oxygen needed for survival, and they often do so elegantly unnoticed. Hundreds of millions of tiny air sacs fill and empty tens of thousands of times per day in a healthy pair of lungs. Despite working around the clock, lungs are delicate. If the entire surface area of adult lungs were spread out, it would cover a tennis court, and all of that area is routinely exposed to the environment. When you consider that the only other organ that shares that exposure level is the relatively hardy skin, it's understandable why lungs are especially sensitive to change.

Lifetime of Monitoring  Winter 2007
Surviving childhood cancer is not the end of the battle. As Hutchinson Center researchers have long known, the risk of a second cancer or other chronic illness is a threat that looms into adulthood. For thirty years, the Center has been following patients in efforts to ensure that those patients receive quality medical care after leaving the Center.

LTFU looking for answers in aging  Fall 2006
Cancer survivors often experience symptoms that make them feel older than their age. Patients frequently report symptoms of muscle and joint stiffness, weakness or discomfort, and they tire faster than their contemporaries. Fred Hutchinson Cancer Research Center researchers Drs. Karen Syrjala and Janet Abrams have been listening to those concerns, and are now taking action.

LTFU leading the way  Summer 2006
For transplant patients and their care providers, some of the most important things that determine the success or failure of therapy come months or even a few years after the last bag of stem cells has been infused. Complications of stem–cell transplants are a fact of life for many patients and not just in the first three months after the transplant, once thought to be the most critical time.

Patient recognition wall celebrates you  Spring 2006
Walk down the main hallway of the Thomas Building at the Hutchinson Center and along one wall you will pass displays celebrating Nobel laureates, corporate donors and special-event fund-raisers. There's the requisite mission statement and institutional description, even a donated Rodin sculpture.

Life 10 years later  Winter 2006
Survivors of stem-cell transplantation for blood cancers can expect to be nearly as healthy 10 years later as adults who have never had a transplant, according to a recent Hutchinson Center study.

Breakthrough for ALL babies  Fall 2005
Dr. Jean Sanders has treated children with cancer for 30 years, long enough to know a success story when she sees it. She also knows that it takes awhile to change people's minds about what works.

Nothing small about 'mini-transplants'  Summer 2005
It's called a "mini-transplant" but there's nothing diminutive about this innovative and lifesaving therapy. First developed at Fred Hutchinson Cancer Research Center in 1997, the mini-transplant is offering new hope for older patients with leukemia, lymphoma and other serious blood diseases — a population that is often medically unfit to withstand the rigors of a conventional blood (hematopoietic) stem-cell transplant. And, the therapy shows promise for treating some solid tumor cancers.

A second chance for children  Spring 2005
A second transplant can offer a cure for some children with an aggressive form of leukemia whose cancer returns after their first stem-cell transplant, according to a recent Fred Hutchinson Cancer Research Center study.
Berg, Barbara. Adapted from an article in Center News, internal Fred Hutchinson publication (Jan. 22, 2004).

Temporary setbacks  Winter 2005
New study shows decline in mental, physical skills after transplantation are largely reversed within one year.
Forbes, Dean. Adapted from an article in Center News, internal Fred Hutchinson internal publication (Oct. 21, 2004).

New thinking about GVHD  Fall 2005
A fresh look at an old problem often yields new solutions. Scientists are finding this philosophy holds true for their efforts to combat graft-vs.-host disease (AZ).
Berg, Barbara. Adapted from an article in Center News, internal Fred Hutchinson internal publication (Aug. 19, 2004).

Approaching 'normal'  Summer 2005
After a months-long stay in Seattle for a bone-marrow or stem-cell transplant, most patients long for the day that they will head home to a "normal" life, free of daily clinic visits, pills and blood tests. Yet even when treatment is successful, re-entry into former routines and family life can leave some transplant survivors questioning just what a normal life really means.
Berg, Barbara. Adapted from an article in Center News, internal Fred Hutchinson internal publication (May 6, 2004).

Normal life, 20-30 years later  Spring 2005
Transplant patients' newly developed immune systems can function well, says study of world's longest survivors.
Edmonds, Susan. Adapted from an article in Center News, internal Fred Hutchinson internal publication (Jan. 3, 2002).

Fred Hutchinson Cancer Research Center is a world leader in research to prevent, detect and treat cancer and other life-threatening diseases.